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Archive for June, 2010


I’m raising money for OREGON PARENT TRAINING AND INFORMATION CENTER -please make a donation by visiting my Firstgiving page: http://www.firstgiving.com/orpti
You can donate online with a credit card. All donations are secure and sent directly to OREGON PARENT TRAINING AND INFORMATION CENTER by Firstgiving, who will email you a printable record of your donation.

If you would like to start a fundraising group to support OrPTI please visit the above website! The more the merrier!

Please send my page on to anyone who might like to donate!

Danielle Bethell

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Research Study


Pei-Chun Hsieh is a doctoral student in the Department of Recreation, Parks, and Tourism Studies at the Indiana University, Bloomington. She is conducting a research study to understand how parents adjust to the stress associated with caring for a child with a developmental disability. The major aim of this study is to investigate possible factors that may promote successful adaptation for these parents. The hope is that the results of the present study will help service agencies target families who may be at greater risk, as well as provide recommendations for developing programs that may better serve these parents.

Individuals will be qualified for participation in the study if they are older than 18 and a parent who provides care to a co-residential child (either a minor or an adult) who has been diagnosed with a developmental disability.

In this project, the participants will be asked to complete an online survey, which will take about 20-25 minutes to complete. In appreciation for their time and effort, participants can opt to enter a drawing for one of ten $50 Target gift cards upon the completion of the survey. This study invites an estimated 435 participants to complete the survey; therefore, the estimated odds of winning a gift card are one out of 43. The web survey will remain active from May to August. Parents who are interested in this study can access the survey through the following link: http://www.surveymonkey.com/s/parentalcaregiversurvey

If you have any questions regarding this study, please contact Pei-Chun Hsieh at pehsieh@indiana.edu or 812-3913253.

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All children need health care. Unfortunately, too many kids don’t have health coverage, which means they don’t get the health care they need when they need it. That’s why Oregon Healthy Kids, a newly expanded health coverage program for uninsured children, will help make sure every child in the state has health insurance. Healthy Kids provides no-cost and low-cost health coverage for Oregon children and teens up to 19 years of age. Coverage lasts for one full year and covers all health needs, including doctor visits, dental care, vision, mental or behavioral health services, and prescriptions. No child will be turned away because of pre-existing conditions or be put on a waiting list.

Family income will determine whether a child is eligible for the free or low-cost coverage option. For example, a family of four that earns as much as $66,000 a year can qualify for low-cost coverage.

In order to reach every uninsured child in Oregon, the office of Healthy Kids has partnered with community based organizations to conduct outreach and help families enroll. Oregon Action’s Healthy Kids Organizer is available to speak at community events, educate organizational staff about Healthy Kids, and assist families in enrollment. The goal is breakdown all barriers to enrolling children in this insurance program.

Please contact Jennifer Mangnall at 971-634-0005 or
Jennifer@oregonaction.org for more information.

Additional information is available on the Healthy Kids website,
http://www.oregonhealthykids.gov/

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Everyone teaches their children not to say it and then when you least expect it, someone says it. It hits you like a forceful punch strong enough to knock you to your knees. That word is ‘retard.’ It’s as harsh as the sound of nails on a chalkboard. Why is this word so commonly used in our society? A friend of mine and I were standing in line at our local cinema waiting to buy our tickets. We were talking and enjoying our time together. In front of us in line were three teenage girls who were engaged in their own conversation. They were loud and were inconsiderate to the people around them. They discussed their boyfriends, new haircuts, what they would wear to the Saturday night dance, and then one of them said it. “That girl is retarded.” ‘Retarded’ rang through my head and I saw red. I looked up at my friend and she knew exactly what I was thinking. Should I take this moment to educate these girls on how hurtful this word really is? Do I tell them that my daughter has an intellectual disability? Do I tell them that the word ‘retarded’ is a demeaning word, and can be very hurtful to people? Do I ignore their ignorance? Do I stand silently, say nothing, and miss a chance to inform three young people about this word. My answer is no! My daughter deserves better than that. So, I ask all of you now. Stand with me and unite to remove the ugliest word from our vernacular.
If I could do one thing in my lifetime that would have lasting value, it would be to strike that word from the perpetual use it has in our society, and I would make people understand true hurt that is permanently attached to it by its inappropriate placement in everyday conversations.

Janice Roberts
Executive Director
Oregon Parent Training and Information Center

Featured in Logan Magazine
http://www.loganmagazine.com

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